We recently attended an Alzheimer’s Research UK North East Network-sponsored event, supported by Dementia Action Teesside. The day brought together researchers, clinicians, practitioners, and people with lived experience to share ideas and perspectives.
One of the speakers was Michael Booth, a former carer for his mum, who lived with young onset Alzheimer’s disease for nine years, and now himself a person living with the same condition. This gives Michael a view from both sides and he had the following heartfelt message for unpaid carers:
“I would like to speak to our Unpaid Carers for a minute or two.
You are the rock. The anchor. The steady hand in our storm.
You carry the weight of love, responsibility, and exhaustion - often without recognition, without rest, and without support.
To you, I would like to say a very big: thank you.
Your task may seem thankless, never-ending, and unsupported. But to those of us diagnosed, you are everything. Never forget that!
But the dementia institution as a whole: researcher, clinicians, support workers, charities
We must do better.
As a whole we need to provide respite, resources, and respect for our unpaid carers.
We must build systems that support those that work tirelessly - not just emotionally, but practically.
The unpaid carer deserves every bit of praise for their love and unwavering commitment”
Michael also said:
‘I really do believe we need to do more for our unpaid carers. The silent NHS, if you will. They are fantastic in their tireless work."
Michael has written about his experiences in his book Dementia, You Are Not Alone!: From the perspective of a former carer and now a person living with dementia. His voice is a reminder of both the challenges and the strength found within the dementia community and of how vital it is that we continue to support unpaid carers.
For more information about caring for someone living with dementia download our guide Looking After Someone Living with Dementia: Printable Guide where you can find information about the range of local support services across South Tees.
